Wednesday, December 28, 2011

Free Concert for Children with Special Needs


Homemade, Adjustable, and Washable Weighted Blankets

These are the homemade, adjustable, and washable weighted blankets that many in the family worked on for Christmas. The design and most of the work was done by Grandma. If you don't want to make it all from scratch, you can attach the weighted pockets to any blanket made from material strong enough to hold the weight. For Instructions Click Here

6 blankets, 4 with weighted attached pockets
This is the backside of the second blanket from the left.
  Strips with snaps to attach the weighted pockets to the blanket for easy assemble.
The weighted bags may be removed from the pockets 
so the blanket and pockets may be washed.
Six pockets across and ten down for a twin size bed.
The best part is deciding where to have the weight.
Not every pocket has to be filled.
Each pocket has velcro inside to attach each bag in five spots.
Then they don't fall out and have even weight distribution.

  The top of the blanket has a flap sewn over 
to keep the snaps from coming undone.

New Years Revolution Run


We have an exciting event we are participating in and want to invite you and all of your friends to join us on the morning of December 31 at the Utah Olympic Oval for the New Year's Revolution Run.

The New Year's Revolution Run is a unique end-of-year running event benefiting the Autism Council of Utah. For every runner they have participating in the race, they'll donate $5 to us. With as many as 500 runners participating, that could mean $1,500 for the Autism Council of Utah.

We have arranged for arranged for a special discount that you can use or pass on to anyone who might be interested. Just type in the code 'autism' at checkout and you'll get $5 off the regular registration price.

Going for a long run in Utah on December 31 might sound a little chilly for most of us. But the New Year's Revolution Run is different. By using the 442-meter indoor running track at the Utah Olympic Oval, we can run in temperatures that are two or three times as warm as it will be outside. They will give each runner an electronic timing chip to keep track of the distance so all you have to do is run or walk your way into a new year. As an added bonus, each lap completed will earn you an entry into hourly prize drawings for items such as shoes, shirts, hats, energy bars and more.

Hope to see you there and please, pass the word to anyone who might be interested in supporting the Autism Council of Utah at this event.

DSPD Services

If you are interested in having your child placed on the Division of Services for People with Disabilities waiting list for future services you can contact the Intake Department - let them know you want your child with a disability placed on the waiting list for the Home and Community Based Waiver Program.
Intake - 1-877-568-0084
Toll Free 1-800-837-6811
State Office  801-538-4200

You must first be on the waiting list to be eligible for services.  It can be a long wait - don't be discouraged - but this is how the state legislature will know how many kids need services.

Wednesday, December 21, 2011

The Crappy Life of the Autism Mom

Here is a quote from  "The Crappy Life of the Autism Mom" by Kim Stagliano


"Autism is like a box of Bertie Bott's Every Flavor Beans (from the Harry Potter books.) Some autistics got the raspberry cream or root beer flavor. They can speak eloquently, write blogs, move out on their own, marry, have children and manage their autistic traits. Others with autism, like my three girls, got the ear wax/vomit/dog poop flavor. They need help 24/7 to navigate the world."

Family Swim Night in Mesa, AZ


Friday, December 16, 2011

Order From Amazon

If you are having trouble with the button on the left for Pay Pal, The book, Autism Understanding The Puzzle is also listed for purchase on Amazon, be sure to purchase it from Sharla Jordan if you want an autographed copy.

Thursday, December 15, 2011

Bouncin' Off the Walls in January



Big MAK"s at Bouncin' Off the Walls
9400 S 350 W Sandy, UT
Monday, January 9th
From 6 - 8 pm
For fun in a giant bouncy room that only has one door in/out.
$5 a kid and lots of cool people to hang out with!
Bring everyone!!

Pump It Up At The End of December in AZ

December 28, 2011

Sensory Jump Time at Pump It Up

Pump It Up has partnered with Autism Speaks and is proud to offer Sensory Jump Time, a program open to all children on the autism spectrum and their families.
Children attending will have the opportunity to make new friends, jump, slide and play sensory-friend games within a controlled, safe and supportive atmosphere. The variety of our giant inflatables provide a great environment to work on coordination, balance and motor skills, all while having a great time!
Join us the last Wednesday of every month between 5:00-7:00 pm for Sensory Jump Time. Advanced registration is encouraged as this program is not open to the generalpublic in order to provide a safe environment for the children.
Cost is $7 per child. Parents and caregivers are free! Space is limited.

Sensitive Santa in AZ

Tuesday, December 13, 2011

Book Review from a Grandmother

I have my own copy of the book by Sharla Jordan, Autism, Understanding The Puzzle, and am amazed at all the information that is contained in such a small book!  This book is so easy for anyone to understand and comprehend more fully the different aspects of Autism.  It helps me to see better the challenges of parents, teachers and care givers who assist persons with Autism Spectrum Disorders.
    
Throughout the book Sharla has listed questions asked by people who really want to know about Autism.  She then goes on to address and answer those questions in very simple language.  This has been very helpful to me, a grandmother, with eight grandchildren who have been diagnosed with Autism.  The Table of Contents lists every question, with the page it is on, making it so helpful and quick to find what I want to read about!
      
I highly recommend this book to anyone with their own questions about Autism!!!   
By Junith Roberts




Best Autism Book Out There!
Short, Sweet, and to the Point.


I highly recommend the book, 
Autism Understanding the Puzzle, to parents and extended family.

I Love It!
Even my husband has read it.

By Laura Benedict
Mother of a child with Severe Autism
Parent Advocate for Dr. Lisa Palmeri
pediatric specialist for children with autism



I just read the book "Autism: Understanding the Puzzle" and highly recommend it! The book is written in a way that even I could understand. I have 10+ nieces/nephews who have autism so I was very interested in reading it. One part of the book helps explain some "do's & don'ts" and if I'd had these suggestions years ago it could have prevents some hurt feelings.

If you work with children or have relatives with autism, this book is a must read.
By Donna Millett





Autism, Understanding the Puzzle is excellent. It accomlishing its purpose of helping its readers, people like me, to understand "the Puzzle" of autism.  It explains the terminology.  It provides a broad basic understanding of the many types and categories and degrees of autism.  It does so without requiring a lot of time in study or research.  It provides hope.  It assists a person who may have difficulty with aceptance of autism in someone who is dear.  It is useful and practical.
David L. Roberts

Tuesday, December 6, 2011

Autism Night Before Christmas

Autism Night Before Christmas
by Cindy Waeltermann

Twas the Night Before Christmas
And all through the house
The creatures were stirring
Yes, even the mouse

We tried melatonin
And gave a hot bath
But the holiday jitters
They always distract

The children were finally
All nestled in bed
When nightmares of terror
Ran through my OWN head

Did I get the right gift
The right color and style
Would there be a tantrum
Or even, maybe, a smile?

Our relatives come
But they don’t understand
The pleasure he gets
Just from flapping his hands.

“He needs discipline,” they say
“Just a well-needed smack,
You must learn to parent…”
And on goes the attack

We smile and nod
Because we know deep inside
The argument is moot
Let them all take a side

We know what it’s like
To live with the spectrum
The struggles and triumphs
Achievements, regressions…

But what they don’t know
And what they don’t see
Is the joy that we feel
Over simplicity

He said “hello”
He ate something green!
He told his first lie!
He did not cause a scene!

He peed on the potty
Who cares if he’s ten,
He stopped saying the same thing
Again and again!

Others don’t realize
Just how we can cope
How we bravely hang on
At the end of our rope

But what they don’t see
Is the joy we can’t hide
When our children with autism
Make the tiniest stride

We may look at others
Without the problems we face
With jealousy, hatred
Or even distaste,

But what they don’t know
Nor sometimes do we
Is that children with autism
Bring simplicity.

We don’t get excited
Over expensive things
We jump for joy
With the progress work brings

Children with autism
Try hard every day
That they make us proud
More than words can say.

They work even harder
Than you or I
To achieve something small
To reach a star in the sky

So to those who don’t get it
Or can’t get a clue
Take a walk in my shoes
And I’ll assure you

That even 10 minutes
Into the walk
You’ll look at me
With respect, even shock.

You will realize
What it is I go through
And the next time you judge
I can assure you

That you won’t say a thing
You’ll be quiet and learn,
Like the years that I did
When the tables were turned…….

Sunday, December 4, 2011

Therapeutic Horseback Riding

Our boys have benefited from therapeutic horseback riding for over 2 years. 
The article talks about this little girl, Kate, David Benedict's daughter. 
She is one of our cherished friends we recommended horse therapy to.
It has improved her behaviors and interactions with others.
 

Wednesday, November 30, 2011

Book Reviews for Autism: Understanding The Puzzle


*****
Nov. 5, 2011By Janice LeFevre
I recommend this book to anyone who loves and serves a child with autism. Sharla Jordan's warm and informative book will help you understand the special needs of those with autism while giving concrete tips on how to serve. I wish I'd had this book six years ago when I first began helping a little boy with autism in my church class. This book is filled with excellent information that helped me understand my little friend and enabled me to serve him better. I'm getting a copy for myself and several to give away!

*****
Nov. 28, 2011By James Vaughan
I've known about this book coming out for a while and I eagerly anticipated receiving my copy and I was certainly not let down at all, it's fantastic! Having a child with autism, explaining to other parents is sometimes hard to do because it certainly comes across as personal opinion, however letting someone read this book, then talk about the challenges parents like us face on a daily basis becomes much easier for someone to understand. Sharla's book really makes the topic of autism easy to understand, explains such challenges as sensory overload, various therapies and most important, the way to show support for those on the spectrum. If you have someone in your life who is simply struggling to understand, look no further than Autism: Understanding the Puzzle for help!


*****
Dec. 5, 2011By Jenn Alvey
Wonderful book! Can relate to EVERYTHING written in it, since I have a son with Aspergers. It's nice to have a book that explains what it is like living with a child who has Autism, because it can be really hard to explain it to others. I definately recommend this book to everyone who has a family member with an ASD, or a parent who has a child with an ASD, or those who wish to understand what it is like for parents.

Thanks for the great reviews Janice, James. and Jenn! 
You can write a review here click on "Ratings and Reviews."

Monday, November 28, 2011

Holiday Boutique and Book Signing


Holiday Boutique
Date: Sat. December 3, 2011
Time: 10:00 a.m to 2:00 p.m
Location: 3841 W 8890 S.
West Jordan

Lots of great Crafts and Paparazzi Jewelry, just in time for the holidays.
Also we will have, the premiere of a new book, Autism: Understanding the Puzzle by Sharla Jordan, who will be here for a book signing.

Book signing the Davis County and North Salt Lake coming soon. 
Stay tune for announcements

Sunday, November 20, 2011

Autism is not the end of the World. ... It's the beginning of a different one.

Walk with me.....
Sally Meyer


Walk in my shoes
for one single day.
Then you'll see why
I need to pray.
Come live in my home
for a week or two
and then remember
I am just like you.
I didnt ask for the things I was given
I didnt choose this road I have taken
Walk a mile with me hand in hand
Then perhaps you will understand.

I'm not really complaining
about the stress in my life,
I know that we all have
some toil and some strife.
But walk with me, when you think
I am wrong, walk with me
and you'll start to belong.
Embrace my sorrows,
like they are your own,
And then you will know me
And see I have grown.

The journey I take
is different from yours
My life took one of those
unexpected detours,
But this road that I travel
is not really so long,
If the people who watch me
will join in my song.
Listen to my footsteps
and watch how I dance
And then you will know me
and give me a chance.

Take heart and remember
It can happen to you,
who knows where my pathway
will cross over to you?
So speak to me softly
if you can't understand
Remember I once stood
right there where you stand.
And walk with me gently
when the day is at end.
And then I will know
I can call you my friend.

What it's like to walk down a street when you have autism or an ASD

Wednesday, November 16, 2011

Autism Night at the Rink


Looking for a fun event for the whole family
over Thanksgiving weekend?

The Maverik Center and the Utah Grizzlies 
are proud to hold their first annual 
AUTISM Night at the Rink
on Saturday, Nov 26th
At the Maverick Center
3200 Decker Lake Drive, West Valley City, UT

Tickets are discounted and there's Free Skate before the game
(you can even just wear your tennis shoes!)

Ice Skating/Walking from 3:30 to 5:00 PM
Hockey Game starts at 7:05 PM

$8-$12 in section 117


Buy your tickets today. 
Call Jackson Babcock 801-988-8026 
or email Amy Baker gabbbaker@msn.com


Skates are provided, or you can wear your own tennis shoes. You may bring a helmet, gloves, stroller, wheelchair, or anything else you need to help your child feel comfortable on the ice. We will need to be out of the rink from 5:00 to 6:00 pm. This will be a great time to grab some dinner and take a break before the game!

Thursday, November 10, 2011

Making Our Way: Autism

Hope you can set aside about an hour to watch this GREAT video!
Early detection and intervention is so important to help children overcome their challenges and have a greater chance for improvement.
I love how Temple Grandin explains that autism thinking is bottom up not top down. Give the child repetitive examples and teaching situations to understand a concept or theory.
Sensory integration and therapy exercises are wonderful. After getting feedback from multiple specialist, we use sensory tools daily and they help to lower our sons' anxieties and help them function better.
Fabulous parents too, who don't allow their son's challenges to become limitations or excuses.


Watch Making Our Way: Autism on PBS. See more from MAKING OUR WAY: AUTISM.

Autism or Asperger's? It Might Depend on Your Doctor

Here is an interesting article, "Autism or Asperger's? It Might Depend on Your Doctor," about different diagnosis being given according to the doctors interpretation of which Autism Spectrum Disorder best fits the patient.

Free Workshops by Utah Parent Center


The Utah Parent Center in partnership with Davis School Districtis pleased to announce the following upcoming workshops. 
  
'Tame the Lion without a Whip'Managing Problem Behavior in Positive Ways
The focus of this class will be to help participants understand problem behavior (Why the child presents the behavior). Participants will also assess various interventions that have been successful in changing problem behavior.   Presented by Marian Hunt.   

***See correct date below!*** 
Thursday, November 17, 2011              6:30 - 8:30 p.m.                Click here to register.

Workshops are available to parents and families of children with disabilities in the Davis School District and surrounding areas at NO CHARGE!  Pre-registration for each class is requested and appreciated. 
Register today for any of these events by:
Online:  Clicking the links above
Phone:  801-402-5120 or 801-272-1051
The Utah Parent Center reserves the right to cancel any workshops for which there are no individuals pre-registered!  Please let us know if you are planning to attend. 
 For additional information about the Utah Parent Center, 
please visit our website at www.utahparentcenter.org

Wednesday, November 9, 2011

The Book is Available to Order!

To order your copy click here

Support independent publishing: Buy this book on Lulu.

If you want an autographed copy you can order here



Book Signing Event in Davis County Coming Soon, Stay Tuned.

From the Author...About the Book

Saturday, November 5, 2011

"The Peek Award Goes to Dr. Temple Grandin"

"Temple Grandin — the doctor of animal science/best-selling author and expert on autism and inspiration for the HBO movie that bears her name — (was) in Salt Lake City on Thursday, Nov. 3, to accept the Peek Award for Disability in Media." (KSL)

"The new award, which will be presented at 7 p.m. at the Rose Wagner Theater, honors a subject, director or actor in a film that sheds new light on disabilities and heightens social awareness. It’s named in honor of Utahn Kim Peek (1951-2009), who worked to increase awareness of disability through the media and improve education for children with disabilities. Peek helped inspire Dustin Hoffman’s savant character in 'Rain Man.'" (KSL)
"Childlike and beyond brilliant, with a charming sense of humor, Utahn Kim Peek, who died in 2009, was the mega-savant who inspired a Hollywood screenwriter, Barry Morrow, to create "Rain Man."
"The film won four Academy Awards and made Peek a celebrity who traveled the world with Morrow's Oscar, changing perceptions of people with disabilities. Thursday, that 'most loved Oscar' -- so named because more than 400-thousand people have touched it, will be given to Salt Lake City." KSL
You can learn more about the Real "Rain Man" in these next three videos about Kim Peek.







We had the privilege to be in attendance at the moving award night, were learned more about Kim Peek and Temple Grandin. Their wonderful and unique inspiration and contributions to this world are profound. Also in attendance that night was Barry Marrow and Francis Peek, Kim's unconditionally loving and devoted father, who presented the award to Temple.

After receiving the award, Dr. Grandin spoke to the audience, "The World Needs All Kinds of Minds". She encouraged the listeners to help those with autism overcome their challenges, focus on their strengths, and become someone remarkable and special. As parents, we left empowered and have a strengthened desire to keep at our honored role as parents to our special boys.

Like many in the audience, we stood in line to receive Temple's autograph, which she addressed to our boys. They were delighted to see it when we brought it home.




During her visit to Utah one of her several stops was at our son's school in North Salt Lake - "A lot of the kids I've seen here at the school are like a lot of kids I went to school with, they'd be just labeled geeky and nerdy, and there's many of these kids out in industry," Grandin said. "They are the kind of kids who keep your computer going --half of the NASA space scientists probably have been on the spectrum." KSL

“I want to emphasize, autism is a big spectrum ranging from somebody who is going to remain nonverbal all the way up to famous scientists,” Grandin said. “You would have no technical equipment here. You would have no hotel here if you didn’t have people that were interested in things. . . Because after all, who do you think made the first stone spear? It wasn’t the yackity yacks around the campfire, that’s for sure.” Temple Grandin, KSL

Friday, November 4, 2011

Big MAK's Lunch - Nov 15th


Mark your calendar for the MAKS Lunch
Join us Tuesday - November 15 at 11:30
Joy Luck in Bountiful
Hope to see you there!!

Thursday, November 3, 2011

Jason McElwain Autistic Basketball Player



I saw this years ago and saw it again recently.
It is such a great story and worth posting.
The best part was how his teammate and school
loved him even before this exciting game.


Tuesday, November 1, 2011

Temple is Amazing!

One of our boys had the unique and wonderful opportunity to have Dr. Temple Grandin come by to see his school and talk to the students at Spectrum Academy. She gave encouraging and empowering words. She answered some of their questions and as always did a wonderful job advocating the strengths of autism. She left them with the words, "Grow up, reach your goals and be someone special!"

http://www.ksl.com/?nid=148&sid=17905546

We are excited to see her again this week when she is receives the Peek Award for Disabilities in Media and speaks to the audience about why the world need all kinds of brains.

Hope For Autism & Asperger's Syndrome: My Story




Monday, October 31, 2011

11 Questions Students on the Spectrum Can Ask their College



Check out this blog post by Autism Speaks. It has 11 Questions for students on the spectrum to ask their College/University.



Caregiver Conference‏








You're Not Alone:
A Day for You
2011
Education, Rejuvenation, & Support


November 9, 2011
from 8:00 am to 7:00 pm
9750 South 300 West, Sandy, UT  84070
 
Sponsored by The Utah Coalition for Caregiver Support and 
Utah Hospice and Palliative Care Organization
 
The Utah Parent Center, Utah Family Voices and the Family to Family Network participate in the Utah Coalition for Caregiver Support 
representing disability issues. 

Take a day to relax and find the support you need to manage your care situation!
 
Professional Caregivers
  • Conference Cost is $25.00 (includes lunch)   
  • See Registration Form for details.   
Questions?  Call 801.538.3926